This website is for people who have been diagnosed with CTCL and their friends and family. CTCL Answers has been developed by Kyowa Kirin in partnership with Healthcare Professionals and Patient Advocacy Groups. CTCL Answers is the property of Kyowa Kirin International PLC. All rights reserved.

You’ve been diagnosed with CTCL

A diagnosis of cutaneous T-cell lymphoma (CTCL) can be difficult to come to terms with. If you or someone you know has been diagnosed with CTCL, you probably have a lot of questions. Watch the video to find out more.

Read on to see answers to some of the questions you might have

Explore the resources below to understand a bit more about CTCL and what it means

An information sheet created by Lymphoma Action on understanding lymphoma

This resource contains information on what CTCL is, who gets it, symptoms, diagnosis and staging, types of CTCL, follow-up and research, and clinical trials.

Kyowa Kirin has received permission from Lymphoma Action to link to its materials. By clicking on this link, you will leave the CTCL Answers site.

A video created by the Cutaneous Lymphoma Foundation

Listen to lymphoma expert Dr. Basem Williams provide an overview of the diagnosis, staging and prognosis of cutaneous lymphoma.

Kyowa Kirin has received permission from the Cutaneous Lymphoma Foundation to link to its materials. By clicking on this link, you will leave the CTCL Answers site.

An animation created by Kyowa Kirin

Learn about flow cytometry and why it is important for understanding and managing your CTCL.

 
To request a download of the flow cytometry animation, click here.

An infographic created by Kyowa Kirin

Learn about flow cytometry and why it is important for understanding and managing your CTCL.

A video created by Kyowa Kirin

Listen to a patient living with mycosis fungoides describe how it has affected her and hear her advice for people living with CTCL.

If you have more questions on a diagnosis of CTCL, always ask your dedicated healthcare team.

Would you like information about treatments for CTCL?

Would you like some information on how to explain your diagnosis to friends and family, or do you want to know how you can best support someone you know who has been diagnosed with CTCL?

KKI/INT/MOG/0686
January 2023

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CTCL Answers has been created for people living with CTCL and their families.
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