Resources
We know how difficult it can be to find information that is relevant and useful for a rare disease like cutaneous T-cell lymphoma (CTCL). All the resources created for CTCL Answers in partnership with healthcare professionals and Patient Advocacy Groups are featured here. Additionally, this page has links to useful information on patient websites for you to explore.
We will add more information over time, so check in and see how we can help you navigate your CTCL journey.
Consultation discussion guide
Created in partnership with Dr AlFadel AlShaibani, Haematologist
What to expect during ongoing treatment and follow up appointments podcast
Created in partnership with Dr Yousef Binamer, Dermatologist
Tips to manage your wellbeing with CTCL audio
Created in partnership with Danuta Orlowska, Clinical Psychologist
How to explain your CTCL diagnosis to family and friends leaflet
Created in partnership with Dr Nina Farquharson, Dermatologist
Understanding flow cytometry animation
Developed and funded by Kyowa Kirin International
To request a download of the flow cytometry animation, click here.
Understanding flow cytometry infographic
Developed and funded by Kyowa Kirin International
Kyowa Kirin has received permission from Lymphoma Action to link to its materials. By clicking on these links, you will leave the CTCL Answers site.
CTCL information sheet
Guided mindfulness for relaxation video
Your emotional wellbeing and mental health video
Living with skin lymphoma information sheet
Living with and beyond lymphoma booklet
Kyowa Kirin has received permission from the Cutaneous Lymphoma Foundation to link to its materials. By clicking on this link, you will leave the CTCL Answers site.
Cutaneous Lymphoma 101 video
Cutaneous Lymphoma treatments – early & late stage video
Printable treatment tracker
'Cutaneous Lymphoma: is this cancer?' video
Answers from the experts: combination therapies video
Itch, Itch, Itch video
Skin care solutions webpage
Kyowa Kirin has received permission from Changing Faces to link to its materials. By clicking on this link, you will leave the CTCL Answers site.
Mental health & well-being webpage
Coping with people’s reactions webpage
Relationships & social life webpage
KKI/INT/MOG/0721
January 2023
For further information or questions, always speak to your healthcare team
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CTCL Answers has been created for people living with CTCL and their families.
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