Living with CTCL
Living with cutaneous T-cell lymphoma (CTCL) can affect your emotional wellbeing because of the impact the disease has on the way you look and feel about yourself, and how you carry on with your daily life.
What can I expect?
A diagnosis of CTCL brings a unique combination of factors that can impact your daily life and emotional well-being.
Clinical Psychologist, Danuta Orlowska, explains how these aspects of a CTCL diagnosis can combine to impact life for those affected.
What can I do to help myself live better with CTCL?
There are several organisations, for people who have CTCL or other rare cancers that are able to offer practical advice on daily living, and support on ways to cope with your feelings.
Cutaneous lymphoma: Is this cancer?
Listen to three clinicians explain if cutaneous lymphoma is a cancer and what this means for you
Permission to share information included on this site has been granted by Changing Faces, Cutaneous Lymphoma Foundation and Lymphoma Action. By clicking on these links, you will leave the CTCL Answers site.
If you have more questions on managing symptoms of CTCL, the impact on your mental health, or side effects of treatment, always ask your dedicated healthcare team.
Do you need more information on treatment aims and follow-up appointments?
Would you like information on how to explain your diagnosis to friends and family, or are you wanting to know how you can best support someone you know who has been diagnosed with CTCL?
KKI/INT/MOG/0689
January 2023
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CTCL Answers has been created for people living with CTCL and their families.
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