This website is for people who have been diagnosed with CTCL and their friends and family. CTCL Answers has been developed by Kyowa Kirin in partnership with Healthcare Professionals and Patient Advocacy Groups. CTCL Answers is the property of Kyowa Kirin International PLC. All rights reserved.

Privacy notice

This Privacy Notice contains important information about how we collect, manage, use and protect your personal data. It also describes your data protection rights, including a right to object to some of the processing which we carry out. More information about your rights, and how to exercise them, is set out in the “Your rights” section below.

This privacy notice was last updated in January 2023

1. Who we are

2. Contact information

3. Personal data we collect

4. How we use your personal data

5. Who we might share your information with

6. Legal basis for using your information

7. Your rights

8. Contact us

 

1. Who we are

Kyowa Kirin International, plc (“Kyowa Kirin”, “we” or “us”) is the data controller of information collected through the CTCL website (the “website”).

We are part of the Kyowa Kirin Group which is made up of different legal entities, details of which can be found here and which may be updated from time to time.

2. What information do we collect?

Personal data means all information that can directly or indirectly identify you or other individuals.

Information you give us. You may give us information directly when you contact us on the contact details provided below. You may also give us your feedback on our website by submitting the feedback form below. This will not be linked to your name or contact details, as we do not collect this information.

Information we collect about you. When you visit the website, we will collect information about the way you interact with it. This will not be linked to your name or contact details, as we do not collect this information.

With your consent, we will automatically collect technical and usage data when you visit the website, such as how you reach the website, the most visited pages, your session duration, type of device and browser. We collect this by using cookies.

For more information, please read our Cookie Notice.

3. How we might use your information?

There are a number of lawful reasons for us to process your personal data. We usually rely on consent or legitimate interest.

We use your personal data for the following purposes:

We rely on consent:

  • To improve the visitor experience of the website through the use of cookies;

· We rely on our legitimate interest to:

  • Ensure that website content is presented in the most effective manner for you and for your computer;
  • Respond to your privacy related requests if you contact us;
  • Administer our site and for internal operations, including troubleshooting, and testing purposes;

We will use your data if there is a legal requirement to do so, such as in response to a request by government or law enforcement authorities conducting an investigation.

4. How long will we hold your information for?

We will hold your personal data on our systems for as long as is necessary to fulfil the purposes that we collected it for, including for the purposes of satisfying any legal, accounting or other reporting requirements.

Non-essential cookies are stored for a maximum period of 14 months.

Therefore, some information may be kept for more or less time according to our retention policy and applicable laws.

5. Who we might share your information with

We will NOT sell your personal data to any third parties.

We may share your personal information with any member of our group where we have a legal basis for doing so. We may share your information with selected third parties including:

  • When we use other companies to provide services on our behalf, e.g. providing website support and when using auditors or other professional advisors.
  • Analytics and search engine providers that assist us in the improvement and optimisation of the website.
  • IT service providers.
  • If we merge with another organisation or form a new entity, your personal data may be transferred to that new entity.

We may also disclose your personal information to third parties to:

  • Comply with any court order or other legal obligation or when data is requested by our regulators or by government agencies or law enforcement agencies or is required by any stock exchange rules where a member of the Kyowa Kirin Group is listed;
  • Enforce or apply our terms of use and any other agreements;
  • Protect the rights, property, or safety of us, our employees or others. This may include exchanging information with other companies and organisations for the purposes of fraud protection and credit risk reduction.

6. International transfers of personal data

Generally, your data will not be processed by service providers operating outside the EEA or the UK. However, if we need to do this, your personal data will continue to be subject to an adequate level of protection or appropriate standard contractual clauses and/or other safeguards approved by the regulators.

A copy of the relevant transfer mechanism will be provided for your review on request to the contact details above.

7. Your rights

When we process your personal data, we are committed to facilitate the exercise of your rights granted by the data protection laws.

Right to withdraw consent: In circumstances where consent has been used to process your personal data, you have the right to withdraw your consent at any time. You can most easily do this by deleting your cookies as appropriate.

Other data protection rights: in addition to the above rights, we are committed to facilitate the exercise of other rights granted by the data protection laws, including access, rectification, deletion, objection, restriction of processing, and portability. You also have the right to lodge a complaint with the supervisory authority in the country of your habitual residence.

How to exercise your rights: If you would like to exercise any of these rights, please contact us using the details set out in the ‘Contact Us’ section below.

8. Contact us

If you have any questions regarding this privacy notice or wish to exercise any of your rights, please contact us. You can also contact our Data Protection Officer:

Kyowa Kirin International
Att. Legal Department
Galabank Business Park
Galashiels TD1 1QH
Telephone: +44 1896 664 0000
Email: kki-privacy@kyowakirin.com

DPO contact information: KKIDPOoffice@kyowakirin.com
DPO contact information (Germany): dpoDE@kyowakirin.com